Speak Out: CSUN Helps Parkinson’s Patients

More than 10 million people worldwide are living with Parkinson’s disease. Within the United States, the combined cost of treatments is estimated to be nearly $25 billion a year, according to the Parkinson’s Foundation.

Parkinson’s is typically diagnosed in patients older than 50, and is characterized by the loss of brain or spinal cord cells that leads to dysfunction and disability over time.

“It’s difficult for people to see their loved ones suffer,” CSUN Communication Disorders & Sciences Department Professor Karen Kochis-Jennings said. “There’s a cognitive aspect with Parkinson’s. It can really change the dynamics in the household. Early signs can be tremor in the limbs, problems with movement, coordination and balance.”

Now CSUN’s partnership with the Parkinson Voice Project is providing patients affordable therapy options.

“We take medicare; we take insurance, and we have a limited amount of scholarships for those who can’t pay for it,” Kochis-Jennings said. “We ask that they just pay a small co-payment.”

With support from the Parkinson Voice Project, a nationwide organization that helps persons with Parkinson’s disease preserve their voices, the program will allow CSUN’s Language, Speech and Hearing Center to help up to 12 patients every month. The staff are trained and certified to run the Parkinson’s Voice Project program at CSUN, and to train students. Patients are already being helped.

“I want to speak louder, with intent, and try to overcome my cognitive problems the best I can,” Parkinson’s patient Earl Lambert said. “It’s about mind over matter after a certain time. You just have to take your time, and make sure that you’re dedicated.”

The Parkinson Voice Project incorporates therapy sessions called “SPEAK OUT”, and follow-up sessions called “LOUD Crowd”, to improve patients’ speaking abilities over time.

For more information contact the Language, Speech and Hearing Center at (818)-677-2856.

Moderator: Scott Geirman

Producer: Alexis Carfagno

Anchor: Claudia Flores

Social Media Editor: Sofia Gutierrez

Reporters: Alexis Carfagno, Joy Edomwonyi, Claudia Flores, Scott Geirman, Sofia Gutierrez, Melina Rudigkeit and Melissa Rodriguez